CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older.
A strong support system is an important aspect of overall well-being, especially for those managing a chronic illness like CF. You are not alone. No matter your age or stage in life, CF Peer Connect can connect you to someone who has been through a similar situation to share stories and learn from each other.
CFRI seeks to provide the national cystic fibrosis (CF) community with current information about cystic fibrosis through educational programs and resources, while providing diverse psychosocial support services to the CF community.
These programs help educate and provide multi-faceted support to those affected by CF, and include the following:
CF SENIOR SATURDAY MEET & GREET
CF Senior Saturday Meet & Greet is a virtual space for people aging with cystic fibrosis to connect, build relationships, find support, and share experiences. Whether you were diagnosed with cystic fibrosis early or later in life, attendees are committed to an atmosphere of trust and compassion.
ADULT COACHING FOR ADULTS WITH CF
Are you an adult living with cystic fibrosis (CF) and experiencing the life-changing effects of modulator therapies?
Turning Points Coaching for Adults with CF, a groundbreaking group coaching program designed to support and empower individuals like you on your journey towards a new and fulfilling life.
Led by certified coach, Roberta Gregoire, Turning Points is a transformative program aimed at helping you navigate the various identity shifts that arise from taking modulator therapies.
SUPPORT FAMILIES NETWORK
Claire's Place understands that a diagnosis of cystic fibrosis can sometimes feel very scary and isolating. No one wants to hear they have a rare disease. Emotional support from others walking this path is incredibly helpful. Families living with CF are standing by to connect and help you navigate the emotional and physical demands of cystic fibrosis.