CFF 2020 Virtual Events
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CFF Virtual Events

Designed by and for adults with cystic fibrosis and their families, virtual events - including BreatheCon, CF FamilyCon, and topic-specific CF MiniCons - provide the opportunity to connect, share, and learn from peers through open and honest dialogue.

ResearchCon: April 16, 2020
CF Family Con: June 18 & 20, 2020
BreatheCon: September 25-26, 2020
CF MiniCon - Transplant: Feb 25, 2021
CF Peer Connect is a peer mentoring program for people with cystic fibrosis and CF family members age 16 and older. Through this program, you'll be matched with a peer mentor who has experience with topics that are important to you. Together, you can connect over video, phone, or email.
The purpose of CF Roundtable is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it.  It also offers a forum for CF adults to communicate with each other.
CysticLife.org is a social network for the CF community. This positive, uplifting site is the central location for people with CF, their family, and their friends to share tips, questions, ideas, experiences and encouragement. Members can maintain a profile, post blogs, ask and answer questions, create polls, directly contact one another, and search others within the community by location, relation to CF, age and gender.
Cystic Fibrosis Research, Incorporated (CFRI) is a 501(c)(3) charitable organization founded in 1975, that funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers.

CF Caregivers Support Group —
Third Tuesday of Every Month
Parents of Children with CF:
2-3pm EST (5-6 PST)
Parents/Spouses/Partners of Adults with CF:
3-4pm EST (6-7 PST)
To Participate by Phone:
 1-650-736-4444
Access code: #070111028
​
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Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed. 
Last Published August 2022 
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