CHARLOTTE CF FAMILIES
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  • WHAT IS...
    • Cystic Fibrosis
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    • Pulmonary Function Test (PFT)
    • Pulmozyme / Dornase Alfa
    • Sputum Cultures
    • Sterilizing the WABI
    • Sweat Test
  • NEWS & UPDATES

SUPPORT GROUPS

Connecting on a personal level with other CF patients and families is an important part of this CF journey.
CF Peer Connect Logo
CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older.

A strong support system is an important aspect of overall well-being, especially for those managing a chronic illness like CF. You are not alone. No matter your age or stage in life, CF Peer Connect can connect you to someone who has been through a similar situation to share stories and learn from each ​other.
GET CONNECTED
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SUPPORT GROUPS

CFRI seeks to provide the national cystic fibrosis (CF) community with current information about cystic fibrosis through educational programs and resources, while providing diverse psychosocial support services to the CF community.

These programs help educate and provide multi-faceted support to those affected by CF, and include the following:
  • Counseling Support
  • Caregiver Support Group (Parents of Children with CF)
  • Caregiver Support Group (Parents/Spouses/Partners of Adults with CF)
  • Online Support Group for Adults with CF
  • Online Support Group for Teens with CF
  • ​Bereavement Support Group
  • Post-Transplant Support Group
  • Support Group for Adults with Late CF Diagnosis
  • Virtual Meeting for Spanish-Speaking Community (Comunidad virtual en español)
LEARN MORE
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CF SENIOR SATURDAY MEET & GREET

CF Senior Saturday Meet & Greet is a virtual space for people aging with cystic fibrosis  to connect, build relationships, find support, and share experiences.  Whether you were diagnosed with cystic fibrosis early or later in life, attendees are committed to an atmosphere of trust and compassion.  ​
LEARN MORE & REGISTER
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ADULT COACHING FOR ADULTS WITH CF

Are you an adult living with cystic fibrosis (CF) and experiencing the life-changing effects of modulator therapies?
​
Turning Points Coaching for Adults with CF, a groundbreaking group coaching program designed to support and empower individuals like you on your journey towards a new and fulfilling life.
Led by certified coach, Roberta Gregoire, Turning Points is a transformative program aimed at helping you navigate the various identity shifts that arise from taking modulator therapies.
LEARN MORE
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SUPPORT FAMILIES NETWORK

Claire's Place understands that a diagnosis of cystic fibrosis can sometimes feel very scary and isolating. No one wants to hear they have a rare disease. Emotional support from others walking this path is incredibly helpful. Families living with CF are standing by to connect and help you navigate the emotional and physical demands of cystic fibrosis.
LEARN MORE
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PEER SUPPORT GROUPS

Offers peer support groups for caregivers of individuals with CF.
LEARN MORE

HOME  |  RESOURCES FOR FAMILIES  |  CF EVENTS  |  NEWS & UPDATES  |  ABOUT US

Thank you to the following sponsors!

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Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed. 
Last Published February 2025
Site Design by Rebecca Preslar
  • HOME
  • RESOURCES FOR CF FAMILIES
    • Children's Activities
    • Classes & Programs
    • Family Planning & Parenting
    • Financial Assistance
    • Food & Nutrition
    • Legal Aid
    • Medications
    • Mental Health
    • Scholarships
    • Support Groups
    • Transplant & Advanced Disease
    • Traveling with CF
    • Treatments & Therapies
    • Browse More Resources
  • ABOUT US
  • CF EVENTS
  • WHAT IS...
    • Cystic Fibrosis
    • Antibiotic Resistance
    • Bronchodilator
    • Chest X-Ray
    • Home Spirometry
    • Hypertonic Saline
    • Inhaled Antibiotics
    • Labs / Blood Work
    • Mucus Thinners
    • Oral Glucose Tolerance Test (OGTT)
    • PEP Device
    • Pulmonary Function Test (PFT)
    • Pulmozyme / Dornase Alfa
    • Sputum Cultures
    • Sterilizing the WABI
    • Sweat Test
  • NEWS & UPDATES