Informational presentation on CF & Mental Health by Pediatric Psychologist, Dr. Zack Held.

The resources below may be useful as you consider the Mental Health of a child, teen, or adult living with CF, or yourself as a caregiver.

Finding a Mental Health Provider for your Child with CF
Finding a Mental Health Provider for your Child with CF
Importance of Caring for the CF Caregiver
Importance of Caring for the CF Caregiver
Depression, Anxiety and Cystic Fibrosis
Depression, Anxiety and Cystic Fibrosis - Clinician Guide
Depression, Anxiety and Cystic Fibrosis
Depression, Anxiety and Cystic Fibrosis
Apps to help with Mindfulness, Mood & Sleep
Apps to help with Mindfulness, Mood & Sleep
Sleep Better Guide for Ages 6-12
Sleep Better Guide for Ages 6-12
Sleep Better Guide for Teens
Sleep Better Guide for Teens
Charlotte Area CF Therapists
Charlotte Area CF Therapists
Parents To Do List if Your Child May Be a Harm to Self or Others
Parents To Do List if Your Child May Be a Harm to Self or Others
Search for a therapist, psychiatrist or support group in your area. The search is based on where you live and what kind of insurance you have
Offers peer support groups for caregivers of individuals with CF.
CF Peer Connect is a peer mentoring program for people with cystic fibrosis and CF family members age 16 and older. Through this program, you'll be matched with a peer mentor who has experience with topics that are important to you. Together, you can connect over video, phone, or email.

Primary Care or
​Family Practice Physician

A primary care doctor can help check for and treat depression or anxiety.

Employee Assistance Programs (EAP)

Your employer may offer health services to you and your and family. The services may have a reduced cost or no cost. Check with your employer’s human resources department for more information about EAP

Find a Provider

To find a provider in your area, contact your insurance company. If you have Medicaid contact your local MCO or LME. You may also download our list of therapists in the Charlotte area who are familiar with Cystic Fibrosis.
Cystic Fibrosis Research, Incorporated (CFRI) is a 501(c)(3) charitable organization founded in 1975, that funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers.

Financial Support for Therapy Sessions

Children and adults with CF as well as their family members (parents, siblings, spouses/partners) are eligible to receive financial support for six individual therapy sessions per year with a licensed provider of their choice.
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CFRI will cover the cost of your insurance co-pay for six sessions, or pay up to $120 per session for six sessions if you have no insurance, or your provider does not accept insurance or is outside of your network. CFRI will pay the provider directly. You can select a licensed therapist in your community (for a referral, you can ask your CF social worker). This program has limited funds and operates on a “first come first serve” basis. Due to high demand, the program often runs out of funding in the second half of the year. 
CF Caregivers 
Support Group

Third Tuesday of Every Month:
Parents of Children with CF:
2-3pm EST (5-6 PST)
Parents/Spouses/Partners of Adults with CF:
3-4pm EST (6-7 PST)
To Participate by Phone:
 1-650-736-4444
Access code: #070111028
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Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed. 
Last Published February 2020 
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