Charlotte CF Families is created by the Atrium Health Cystic Fibrosis Family Advisory Board (FAB). We exist to help local families navigate life with CF in and out of the hospital. We hope you'll join us at an upcoming CF Education Event! You may also contact us anytime with ideas or suggestions for improving our CF Care Center for our CF patients & families.
SAVE THE DATE
2023 CF EDUCATION EVENT
TUESDAY, NOVEMBER 28th
6:30-8:30pm
VIRTUAL EVENT
click button below to register
2023 CF EDUCATION EVENT
TUESDAY, NOVEMBER 28th
6:30-8:30pm
VIRTUAL EVENT
click button below to register
Hear the latest CF research from the 2023 North American Cystic Fibrosis Conference (NACFC)
Presented by Dr. Schellhase, Atrium Health CF Center Director
Mental Health presentation and Q&A from Dr. Zach Held, CF Phychologist
Update on Trikafta from Sarah Murray, Clinical Pharmacist
Presented by Dr. Schellhase, Atrium Health CF Center Director
Mental Health presentation and Q&A from Dr. Zach Held, CF Phychologist
Update on Trikafta from Sarah Murray, Clinical Pharmacist
Reminder: The FALL CF Education Event is virtual. We will host an in-person CF Education Event with vendors in Spring 2024.
ASK A QUESTIONMembers of the CF Family Advisory Board are available to speak with families in our Charlotte, NC community. Find someone who has children the same age as yours, experience with an area of care or medication you have questions about, or just someone who lives near you and may want to meet and chat. Send us an email to be connected with an FAB member!
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RECENT NEWSReceive the latest news and announcements from the CF Foundation and our local CF Care Center on our blog or social.
We also release a seasonal CF newsletter featuring relevant articles, favorite recipes, and CF Care Team updates, along with reminders of upcoming events. If you would like to join our mailing lists, sign up here.
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MEET THE CARE TEAMGet to know the Physicians and CF Care Team members you see in clinic and around the hospital. The multi-disciplinary approach to CF care means patients & families spend a lot of time with healthcare providers from various disciplines. Take some time to read the bios so you feel comfortable with and connected to the team!
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Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed.