CHARLOTTE CF FAMILIES
  • HOME
  • RESOURCES FOR CF FAMILIES
    • Children's Activities
    • Classes & Programs
    • Family Planning & Parenting
    • Financial Assistance
    • Food & Nutrition
    • Legal Aid
    • Medications
    • Mental Health
    • Scholarships
    • Support Groups
    • Transplant & Advanced Disease
    • Traveling with CF
    • Treatments & Therapies
    • Browse More Resources
  • ABOUT US
  • CF EVENTS
  • WHAT IS...
    • Cystic Fibrosis
    • Antibiotic Resistance
    • Bronchodilator
    • Chest X-Ray
    • Home Spirometry
    • Hypertonic Saline
    • Inhaled Antibiotics
    • Labs / Blood Work
    • Mucus Thinners
    • Oral Glucose Tolerance Test (OGTT)
    • PEP Device
    • Pulmonary Function Test (PFT)
    • Pulmozyme / Dornase Alfa
    • Sputum Cultures
    • Sterilizing the WABI
    • Sweat Test
  • NEWS & UPDATES
Logo
Charlotte CF Families is created by the Atrium Health Cystic Fibrosis Family Advisory Board (FAB). We exist to help local families navigate life with CF in and out of the hospital. We hope you'll join us at an upcoming CF Education Event! You may also contact us anytime with ideas or suggestions for improving our CF Care Center for CF patients & families.
ABOUT US
UPCOMING EVENTS
NEWS & UPDATES
SHARE FEEDBACK

WATCH THE RECENT TOWN HALL ON ALYFTREK & UPDATED MODULATOR MONITORING GUIDELINES Q&A

Atrium Health's CF Pharmacist presents on the newest CF modulator, Alyftrek, as well as updated modulator monitoring guidelines in this Town Hall with CF patients and families in February 2025.
WATCH RECORDING

UPCOMING
​CF EVENTS

Calendar Icon

NC CHARLOTTE CHAPTER - CF FOUNDATION EVENTS

The NC Charlotte CFF Chapter hosts fundraising and community events throughout the year. Visit the CFF Event page for upcoming event details!

MASTER CHEFS: March 8, 2025
GUYS & DOLLS AUCTION: March 29, 2025

NC SPRING XTREME HIKE: May 2, 2025
BLUE RIDGE GREAT STRIDES
: May 31, 2025
CHARLOTTE GREAT STRIDES: September 20, 2025
VIEW ALL UPCOMING CFF EVENTS

RECENT
​CF EVENTS

NACFC 2024 RECAP

Virtual Event | October 29, 2024

During our fall CF education event, the Atrium Health CF Care Team provided an update from the North American Cystic Fibrosis Conference (NACFC). 

Hear the latest research & updates from:
  • Dr. Schellhase and Dr. Gardner (Physicians)
  • Dr. Sarah Murray (Pharmacist) 
  • Dr. Zack Held (Psychologist)
  • Kendra Blevins (CF Nurse Navigator)
  • Emily Ashe (CF Dietitian)
  • Beth Jorgensen (CF Social Worker)
  • Lisa Lineberger (Respiratory Therapist)
  • Tim & Beth Brooks (CF Parents & Family Advisory Board Members) 

Learn about the new the CF Care Team Model recommendations, mental health, modulators, new treatments, and much more!
WATCH RECORDING

2024 SPRING CF EDUCATION EVENT

In-Person & Virtual Event | June 2024
  • Kitchen demo and nutrition discussion with pediatric CF dietician (Emily Ashe, RD) and adult CF dietician (Rachel Isom, RD)
  • Panel discussion with parents of young child with CF, teenager with CF, and adult with CF
WATCH RECORDINGS

2023 FALL CF EDUCATION EVENT

Virtual Event | November 2023
  • Listen to the latest Atrium Health CF Center updates
  • Highlights from the 2023 North American Cystic Fibrosis Conference (NACFC)
  • Mental Health presentation from Dr. Zach Held, CF Phychologist
  • Update on Trikafta from Sarah Murray, Clinical Pharmacist
WATCH RECORDING

LOOKING FOR MORE?

View recording of our past several CF Educational Events, including events featuring Beth Sufian of CF Legal and CF patient and advocate, Gunnar Esiason
VIEW ALL PAST CF EVENTS

MEET YOUR CF CARE TEAM

Care Team
Atrium Health CF Care Team | 2023

What is a Multi-Disciplinary Care Team?

Since cystic fibrosis is a complex disease, it requires a team approach the CF patient at the center. Your CF Care Team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.

Our Atrium Health Cystic Fibrosis Care Team includes:
  • Pediatric and Adult Physicians
  • Nurse Practitioners
  • Registered Nurses
  • CF Nurse Navigator
  • Registered Dietician
  • Clinical Social Workers
  • Psychologist
  • Pharmacist
  • Respiratory Therapists
  • Gaestroenterologist

LOCAL CF CARE CENTERS

Picture
Picture

MAIN HOSPITAL

1000 Blythe Blvd.
Charlotte, NC 28203
Picture
Picture

MAIN HOSPITAL

1000 Blythe Blvd.
Charlotte, NC 28203
Picture
Picture

​SPECIALTY CENTER
(PEDIATRIC CF CENTER)

Medical Center Plaza
1001 Blythe Blvd., Suite 200-E
Charlotte, NC 28203
704-381-8840
Picture
Picture

ATRIUM HEALTH PULMONARY CARE
​(ADULT CF CENTER)

1237 Harding Place
Suite 3200
Charlotte, NC 28204
704-355-5375
FIND A CF CARE CENTER NEAR YOU

STAY INFORMED

Receive the latest news and announcements from the CF Foundation and our local CF Care Center on our blog or social.
NEWS & UPDATES

FOLLOW CHARLOTTE CF FAMILIES

HOME  |  RESOURCES FOR FAMILIES  |  CF EVENTS  |  NEWS & UPDATES  |  ABOUT US

Thank you to the following sponsors!

Picture
Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed. 
Last Published February 2025
Site Design by Rebecca Preslar
  • HOME
  • RESOURCES FOR CF FAMILIES
    • Children's Activities
    • Classes & Programs
    • Family Planning & Parenting
    • Financial Assistance
    • Food & Nutrition
    • Legal Aid
    • Medications
    • Mental Health
    • Scholarships
    • Support Groups
    • Transplant & Advanced Disease
    • Traveling with CF
    • Treatments & Therapies
    • Browse More Resources
  • ABOUT US
  • CF EVENTS
  • WHAT IS...
    • Cystic Fibrosis
    • Antibiotic Resistance
    • Bronchodilator
    • Chest X-Ray
    • Home Spirometry
    • Hypertonic Saline
    • Inhaled Antibiotics
    • Labs / Blood Work
    • Mucus Thinners
    • Oral Glucose Tolerance Test (OGTT)
    • PEP Device
    • Pulmonary Function Test (PFT)
    • Pulmozyme / Dornase Alfa
    • Sputum Cultures
    • Sterilizing the WABI
    • Sweat Test
  • NEWS & UPDATES