CHARLOTTE CF FAMILIES

WATCH THE RECENT TOWN HALL ON ALYFTREK & UPDATED MODULATOR MONITORING GUIDELINES Q&A

Atrium Health's CF Pharmacist presents on the newest CF modulator, Alyftrek, as well as updated modulator monitoring guidelines in this Town Hall with CF patients and families in February 2025.

WATCH RECORDING

UPCOMING
CF EVENTS

NC CHARLOTTE CHAPTER - CF FOUNDATION EVENTS

The NC Charlotte CFF Chapter hosts fundraising and community events throughout the year. Visit the CFF Event page for upcoming event details!

MASTER CHEFS: March 8, 2025
GUYS & DOLLS AUCTION: March 29, 2025
NC SPRING XTREME HIKE: May 2, 2025
BLUE RIDGE GREAT STRIDES: May 31, 2025
CHARLOTTE GREAT STRIDES: September 20, 2025

VIEW ALL UPCOMING CFF EVENTS

RECENT
CF EVENTS

NACFC 2024 RECAP

Virtual Event | October 29, 2024

During our fall CF education event, the Atrium Health CF Care Team provided an update from the North American Cystic Fibrosis Conference (NACFC).

Hear the latest research & updates from:

Dr. Schellhase and Dr. Gardner (Physicians)
Dr. Sarah Murray (Pharmacist)
Dr. Zack Held (Psychologist)
Kendra Blevins (CF Nurse Navigator)
Emily Ashe (CF Dietitian)
Beth Jorgensen (CF Social Worker)
Lisa Lineberger (Respiratory Therapist)
Tim & Beth Brooks (CF Parents & Family Advisory Board Members)

Learn about the new the CF Care Team Model recommendations, mental health, modulators, new treatments, and much more!

WATCH RECORDING

2024 SPRING CF EDUCATION EVENT

In-Person & Virtual Event | June 2024

Kitchen demo and nutrition discussion with pediatric CF dietician (Emily Ashe, RD) and adult CF dietician (Rachel Isom, RD)
Panel discussion with parents of young child with CF, teenager with CF, and adult with CF

WATCH RECORDINGS

2023 FALL CF EDUCATION EVENT

Virtual Event | November 2023

Listen to the latest Atrium Health CF Center updates
Highlights from the 2023 North American Cystic Fibrosis Conference (NACFC)
Mental Health presentation from Dr. Zach Held, CF Phychologist
Update on Trikafta from Sarah Murray, Clinical Pharmacist

WATCH RECORDING

LOOKING FOR MORE?

View recording of our past several CF Educational Events, including events featuring Beth Sufian of CF Legal and CF patient and advocate, Gunnar Esiason

VIEW ALL PAST CF EVENTS

MEET YOUR CF CARE TEAM

Atrium Health CF Care Team | 2023

What is a Multi-Disciplinary Care Team?

Since cystic fibrosis is a complex disease, it requires a team approach the CF patient at the center. Your CF Care Team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.

Our Atrium Health Cystic Fibrosis Care Team includes: