The Charlotte CF Family Advisory Board (FAB) partners with the Atrium Health Pediatric and Adults CF Care Teams and Western Carolinas CFF Chapter to host CF education events for patients and families.

These events are opportunities for caregivers in our local CF community to connect with each other while expanding their knowledge on various aspects of CF care.

Guest speakers may include physicians or other members of our multidisciplinary care team, or experts on special topics. 

NC CHARLOTTE CHAPTER - CF FOUNDATION EVENTS

The NC Charlotte CFF Chapter hosts fundraising and community events throughout the year. Visit the CFF Event page for upcoming event details!

MASTER CHEFS: March 8, 2025
GUYS & DOLLS AUCTION: March 29, 2025
NC SPRING XTREME HIKE: May 2, 2025
BLUE RIDGE GREAT STRIDES: May 31, 2025
CHARLOTTE GREAT STRIDES: September 20, 2025

TOWN HALL ON ALYFTREK & UPDATED MODULATOR MONITORING GUIDELINES Q&A

Atrium Health's CF Pharmacist presents on the newest CF modulator, Alyftrek, as well as updated modulator monitoring guidelines in this Town Hall with CF patients and families in February 2025.

NACFC 2024 RECAP

Virtual Event | October 29, 2024

During our fall CF education event, the Atrium Health CF Care Team provided an update from the North American Cystic Fibrosis Conference (NACFC). 

Hear the latest research & updates from:
  • Dr. Schellhase and Dr. Gardner (Physicians)
  • Dr. Sarah Murray (Pharmacist) 
  • Dr. Zack Held (Psychologist)
  • Kendra Blevins (CF Nurse Navigator)
  • Emily Ashe (CF Dietitian)
  • Beth Jorgensen (CF Social Worker)
  • Lisa Lineberger (Respiratory Therapist)
  • Tim & Beth Brooks (CF Parents & Family Advisory Board Members) 

Learn about the new the CF Care Team Model recommendations, mental health, modulators, new treatments, and much more!

2024 SPRING CF EDUCATION EVENT

In-Person & Virtual Event | June 2024
  • Kitchen demo and nutrition discussion with pediatric CF dietician (Emily Ashe, RD) and adult CF dietician (Rachel Iron, RD)
  • Panel discussion with parents of young child with CF, teenager with CF, and adult with CF

2023 FALL CF EDUCATION EVENT

Virtual Event | November 2023
  • Listen to the latest Atrium Health CF Center updates
  • Highlights from the 2023 North American Cystic Fibrosis Conference (NACFC)
  • Mental Health presentation from Dr. Zach Held, CF Phychologist
  • Update on Trikafta from Sarah Murray, Clinical Pharmacist

2022 CF EDUCATION EVENT

In-Person & Virtual Event | November 2022
  • GI Issues: Constipation & Liver Disease
  • Family Planning with CF / CF and Pregnancy
  • Highlights from the 2022 North American Cystic Fibrosis Conference (NACFC)

2021 CF EDUCATION EVENT

Virtual Event | November 2021
  • Special Guest: Gunnar Esiason
  • Understanding CFRD with Dr. Mark Vanderwel
  • 2021 NACFC and Modulator (Trikafta) Update
  • Community Involvement Opportunities
  • COVID Update

2020 CF EDUCATION EVENT

Virtual Event | November 2020
  • CF Legal with Beth Sufian
  • PFTs and Home Spirometry
  • CFF Compass

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Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed. 
Last Published February 2025
Site Design by Rebecca Preslar