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DISTRACTORSThe DistrActors is a group of professional actors on call for hospital boredom emergencies. They utilize storytelling, songs, puppetry, and improvisation to bring joy and emotional healing, and to give children the creative tools to reframe their fight.
How it works: You give us 3-4 of your favorite things, and they’ll write a fully original song and skit based on you! AND/OR they can play an improv game, sing a song, and definitely make you smile in your personalized FaceTime or video call. Videos and video chats are FREE for patients! |
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CUSTOM BIRTHDAY CAKESIcing Smiles is a nonprofit organization that provides custom celebration cakes and other treats to families impacted by the critical illness of a child. We understand that the simple things, like a birthday cake, are luxuries to a family battling illness. Our goal is to create a custom cake for the ill child, or their sibling, that provides a temporary escape from worry and creates a positive memory during a difficult time.
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SUMMER CAMPVictory Junction is a year-round camp experience for children with serious and chronic medical conditions. The best part is it is at no cost to families! Since children with CF cannot be at camp together, Victory Junctions sets aside one spot specifically for a CF patient each week of camp.
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FEEDING TUBE FRIENDSWhen a parent is told that his or her child needs a feeding tube or other medical equipment, it can be a very scary time for the entire family. Tubie Friends™ makes this process less frightening. For children receiving a feeding tube, a stuffed friend with medical equipment mirroring the child's can make the entire process less frightening.
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CYSTIC FIBROSIS: WACKY JUICE MACHINEThis informative and enjoyable book is part of the series The Strength of My Scars, written and illustrated by Maria Baimas-George, surgical resident at Atrium Health.
Cystic Fibrosis: Wacky Juice Machines, guides readers through a story about Cystic Fibrosis (CF) that answers many questions about this complex condition, including: What is it? How do you get it? What does it do? How do you treat it? The story uses an analogy that compares your body to a juice machine and is written in easy to understand language with vibrant illustration to ensure it is comprehensive while being fun, comforting, and hopeful. It includes a glossary of common words you'll hear doctors use through treatment and a 'Facts' section containing important information. Additional special sections describe common CF symptoms, airway clearance therapies, nutritional facts and tips, and provide a comprehensive list of the doctors and other medical specialists that work with CF patients. The Charlotte Family Advisory Board assisted in reviewing the book prior to its publication. |
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SUPPORT FOR FAMILIESThe CARRE Program (Caring About Real Relationships Empathetically) works with families of children with life-altering illnesses and empowers them throughout their healthcare journey. They provide evaluations, education, resources, connections and opportunities in order to meet the unique needs of each family.
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