The Charlotte CF Family Advisory Board (FAB) is a group of Cystic Fibrosis parents, caregivers, and patients who provide feedback and partner with the Atrium Health Cystic Fibrosis Care Team to improve patients' and families' experiences and care during office visits and at the hospital.

​The FAB is committed to enhancing medical care and quality of life for children and adults with Cystic Fibrosis and their families. 

Goals of the Family Advisory Board (FAB)

• Improve the quality of life for people with Cystic Fibrosis.
• Serve as advisory resource to CF Care Center administration and staff and its programs.
• Review recommendations and concerns as identified by patients, caregivers, staff, physicians, or administration.
• Promote improved relationships between patients, families, and staff.
• Provide an avenue for patients and families to offer input into policy and new program development.
• Collaborate as partners with staff, physicians, and administration in the planning and operation of specific programs.
• Offer ideas and suggestions regarding the policy and practice that affect patient-centered care.
• Serve in an educational role, as needed or requested, regarding patient/caregiver perception of care and services.
• Promote CFF Community Resources to CF patients and families.​

CF FAB | 2023 Great Strides Charlotte

Current Projects

•  Host annual CF Education Events with topics of interest to local CF families.
• Host virtual CF Socials for children and their parents/caregivers.
• Partner with CF Care Team and local CFF Chapter to share updates, events and announcements.
• Communicate regularly with CF families through the charlottecffamilies.org website, blog, and social media.
• Update CF Bulletin Board in the waiting room of Levine Children's Specialty Center with current and relevant information for patients and families.
• Send "Newborn Packets" to newly diagnosed families with useful items and tips for families.

Want to be part of the FAB?

The CF Family Advisory Board meets virtually on Monday evenings and volunteers on various projects throughout the month to enhance the lives of patients and families living with Cystic Fibrosis.

Are you interested in being a part of our team to help improve our local Care Center?
Email [email protected] or let your CF Social Worker know you're interested during your next clinic visit! 

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