HealthWell is a financial assistance program for many Cystic Fibrosis medications and nutritional supplements. Families in a certain income bracket may qualify for HealthWell (up to 500% of the Federal Poverty Level).
Cystic Fibrosis Treatment Fund
​up to $15,000/yr
​Covers Copays for many CF Medications and Nebulizer Supplies
Cystic Fibrosis Vitamins & Supplements Fund
​up to $2,000/yr
​Covers the cost of many CF Vitamins, Probiotics & Supplements

COMPASS

Compass is a free, confidential, personalized service from the CF Foundation that assists with insurance, financial, legal, and other issues you are facing.  A CFF case manager can work with you one-on-one.
​

Vertex Pharmaceuticals — GPS PROGRAM

If you have commercial insurance, Vertex may be able to help reduce your co-pay for Trikafta to as little as $0 per fill. (Limitations apply - see GPS website for full details).

 How GPS can help patients with CF: 
  • Financial Assistance
  • Managing Refills
  • Nutritional Support and Recipes
  • Tips for Staying Physically Active
  • Managing Medications through Big Life Changes
  • Hear from Others Living with CF

Services offered:
  • Co-pay Assistance Program (Maximum $20,000/year)
  • Understanding your insurance plan
  • Plan medication refills
  • Nutritional & physical activity guidance
  • Educational resources

​Eligibility:
  • Individuals with a Vertex modulator therapy prescription
  • Not available to individuals with government-funded insurance

Nestle Health Science — ENPEP COPAY ASSISTANCE

Assistance for Patients Using ZENPEP:
  • Co-Pay Assistance
  • Multivitamins
  • Nutritional Supplements
  • Loyalty rewards

Eligibility:
  • Individuals with a valid prescription for an eligible Nestlé Health Science pancreatic enzyme​
  • People with federal, state, or government-funded insurance programs are not eligible for the Live2Thrive program

AbbVie — CREON CO-PAY ASSISTANCE

Assistance for Patients Using CREON:
  • Co-Pay Assistance for CREON (pancrelipase)
  • Multivitamins
  • Educational Emails
  • Nutritional Supplements
  • Medication refill reminders

Eligibility:
  • Individuals with EPI (exocrine pancreatic insufficiency) due to CF and their caregivers
  • Patients with commercial prescription insurance coverage for CREON (pancrelipase)
  • People with federal, state, or government-funded insurance programs cannot access co-pay assistance or multivitamin coverage

KITABIS COPAY ASSISTANCE

Co-Pay Assistance for Patients Using KITABIS Tobramycin Inhalation Solution

Gilead — CAYSTON ACCESS PROGRAM

​Assistance for those who are uninsured or who have been denied coverage for Cayston
  • Those who qualify may also qualify for assistance for additional or replacement parts for their Altera Nebulizer System

​Eligibility:
  • Meet income requirements
  • No insurance coverage, or insured but denied coverage for Caysston

Genetech — PULMOZYME CO-PAY ASSISTANCE

Co-pay assistance to help cover additional out-of-pocket costs for Pulmozyme, after you pay $30 for each 30-day supply (Maximum $10,000/year)

​Eligibility:
  • Are taking Pulmozyme for an FDA-approved use
  • Have commercial (private or non-governmental) insurance
  • Live and receive treatment in the US or US territories
  • Are not receiving assistance through the Genentech Patient Foundation or any other charitable organization for the same expense

COUNSELING SUPPORT

Children and adults with CF as well as their family members (parents, siblings, spouses/partners) are eligible to receive financial support for six individual therapy sessions per year with a licensed provider of their choice. CFRI will cover the cost of your insurance co-pay for six sessions, or pay up to $125 per session for six sessions if you have no insurance, or your provider does not accept insurance or is outside of your network. 

MEDICAL, EMERGENCY & TRANSPLANT SUPPORT

Often insurance does not cover many of the treatments, medications and additional medical necessities required to keep children and young adults battling life-threatening illnesses alive. Many families are faced with the choice of either paying for crucial medical treatments for their children or their ongoing living expenses.

​Ellie’s Army provides the funds necessary to help increase the chances of survival for these children and young adults battling critical illness while relieving the ongoing stress of not being able to afford the basic necessities of living.
  • Medical Assistance
  • Emergency Expenses
  • Transplants

BOOMER ESIASON FOUNDATION (BEF)
​FINANCIAL HARDSHIP FUND

Often, for reasons beyond control, financial obligations can lead to distress. The Boomer Esiason Foundation is committed to providing individuals and families with the assistance needed to achieve stability in times of need. BEF’s goal is to be a temporary resource when its most critical. Sometimes things happen for which you cannot plan. If you are in financial hardship and can’t meet your obligations, please consider applying for BEF’s Financial Hardship Assistance Grant to alleviate the stress and to help to get back on track.
This program is made possible by the generosity of the Caruso Family Foundation.​

BOOMER ESIASON FOUNDATION (BEF)
​CYSTIC FIBROSIS IVF GRANT PROGRAM

Unsurprisingly, the greatest barrier to family building in the CF community is often cost. The Boomer Esiason Foundation is proud to announce the launch of the BEF IVF Grant Program. The BEF IVF Grant Program is dedicated to ensuring that adults with CF who are challenged in their family building journey have financial resources to utilize assisted reproductive technology. BEF has partnered with Kindbody to facilitate the delivery of IVF services to grant awardees. 

BOOMER ESIASON FOUNDATION (BEF)
​LUNG TRANSPLANT GRANT PROGRAM

While the cost of transplantation is typically covered by most insurance companies, travel and relocation costs are typically absorbed by the patient’s families. The BEF Lung Transplant Grant Program is one way the Foundation works to give back to people with CF in the here and now, by helping families pay for the expenses that are not covered by their insurance.

THE CYSTIC DREAMS FUND

The Cystic Dreams Fund provides general financial assistance through assistance grants to individuals and families struggling with the costs associated with cystic fibrosis. Assistance grants are usually issued in the form of direct payments to outstanding bills. An applicant must be the parent or legal guardian of a minor child with cystic fibrosis or an adult with cystic fibrosis.

Eligibility:
  • Applicants must be the parent or legal guardian of a minor child with CF or be an adult with CF
  • Verification of CF status from a clinic, doctor, coordinator, or social worker
  • Verification of bill for which you are requesting financial assistance (mortgage, rent, car payments, or fertility treatment bills are not accepted)

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Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed. 
Last Published August 2024
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