Wishes make life better for kids with critical illnesses. This simple, but powerful belief inspired the founding of Make-A-Wish®. Every wish experience begins with a referral. A child with a critical illness who has reached the age of 2½ and is younger than 18 at the time of referral is potentially eligible for a wish.  Potential wish kids, medical professionals, parents, legal guardians and family members with detailed knowledge of the child's current medical condition can initiate the referral process. The child's imagination is always the driving force in determining, designing and coordinating the wish experience. Wish requests typically fall into one of five categories, but every wish is unique and powerful
Icing Smiles is a nonprofit organization that provides custom celebration cakes and other treats to families impacted by the critical illness of a child. We understand that the simple things, like a birthday cake, are luxuries to a family battling illness. Our goal is to create a custom cake for the ill child, or their sibling, that provides a temporary escape from worry and creates a positive memory during a difficult time.
Our CF Care Team has started a Food Pantry for CF families who express the need. Ask during your next clinic visit how you can utilize this service. Items in stock may vary from week to week based on what has been donated.
Victory Junction is a year-round camp experience for children with serious and chronic medical conditions. The best part is it is at no cost to families! Since children with CF cannot be at camp together, Victory Junctions sets aside one spot specifically for a CF patient each week of camp.
FREE online yoga classes by the CF community, for the CF community.
The CARRE Program (Caring About Real Relationships Empathetically) works with families of children with life-altering illnesses and empowers them throughout their healthcare journey. They provide evaluations, education, resources, connections and opportunities in order to meet the unique needs of each family.
When a parent is told that his or her child needs a feeding tube or other medical equipment, it can be a very scary time for the entire family. Tubie Friends™ makes this process less frightening. For children receiving a feeding tube, a stuffed friend with medical equipment mirroring the child's can make the entire process less frightening. 
TinySuperheroes seeks to empower extraordinary kids as they overcome illness or disability! Nominate a superhero and/or sponsor a cape.

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Charlotte CF Families website and CF Family Advisory Board are operated by local CF families with the guidance of the Atrium Health Cystic Fibrosis Program. No advice or recommendations on this page should be taken above that of your CF Care Team. Every person with CF is different. The advice and suggestions on this page are simply a guide to help families feel connected and informed. 
Last Published November2020 
Site Design by Rebecca Preslar